SPINALpedia is a social mentoring network and video archive that allows the spinal cord injury community to motivate each other with the knowledge and triumphs gained from our individual experiences.
The experts of life with paralysis are the people who live it every day, injured or not. With an incredible diversity of experiences and challenges for a variety of people and injuries, the process of adaptation is daunting and complicated. With SPINALpedia, we give people the opportunity to share experiences and learn from others, meeting a diversity of needs and creating a dynamic, sustainable community grounded in our common desire to overcome the challenges of paralysis.
Membership to SPINALpedia is totally free, including profile features, access to the members of the community and the video content.
SPINALpedia has more to offer when you sign up for an account. By including information relevant to your experience with paralysis and spinal cord injury through our tag system, SPINALpedia works to bring you relevant content. The tags allow us to organize our content and members, giving you the freedom to explore content without the hassle of sorting through a maze of unnecessary information.
Yes. In fact, we strongly encourage non-injured family members, friends and supporters to create an account and share in the benefits of the site. Many existing resources primarily target the person injured, but others who are involved in that person's life are equally in need of support. Spouses, significant others, siblings, children, parents, friends – there are numerous people who have stories to share and questions to ask and for SPINALpedia, we believe the spinal cord injury community is a combination of everyone affected, not just those dealing with the physical repercussions.
After registering or logging in, you can share your videos, photos, websites, or anything else with the community. This information can be shared, tagged and organized on your profile page within the "Share Content." You can also communicate with other members as a mentor or mentee.
You can post any question to your profile page content area. Your question will be viewable on the homepage within the community feed. Remember for medical advice, you should always consult your doctor or a spinal cord injury specialist. Another great place to post a question is on the spinal cord injury message board run by Rutgers University, Carecure. You can visit this message board at Carecure.org.
The videos on our site are all pulled from YouTube.
Subscriptions are one way to stay connected to a user whose videos are interesting or helpful for you. By selecting 'Subscribe' when watching a vid eo, you will automatically be notified every time that user uploads another video. You can manage your subscriptions from your profile page.
E-mail notification settings are found in your Account Settings, accessible from your personal profile page.
Visit your profile and share your story in the “Share Content” field.
To upload a video, visit your profile and locate the "Share Content" field in the top right corner of your profile. Here you can paste the URL of the video you'd like to upload and click "Post" to finalize the upload.
Yes you can. To save videos to a list, you can create a playlist from your profile. On your profile page, click "My Playlists" under the banner at the top of your profile.
Tags are a way of identifying yourself on SPINALpedia that help filter relevant videos to your account and help you connect with compatible users. Tags allow you to indicate whether you are a quadriplegic or paraplegic, incomplete or complete, ventilator dependent, able to walk or walk with assistance, and also the degree of functionality (no, partial or full) for your arms, fingers, trunk and legs. In additional to these physical characteristics, we have other tags including gender, age, type of injury (auto accident, diving, etc.), affiliation to injury (person injured, spouse, parent, etc.), and geographic location.
When selecting tags, you can select as many or as few as you want. Using tags is completely optional, but strongly recommended in order to get the most out of SPINALpedia's technology.
Right now we do not have a tag feature for watching later, but you can create a Playlist to save your favorite videos to watch later. Playlists can can found on your Profile page.
Tags can be added, changed or deleted at any time by going to you Account Settings, accessible on your personal profile page.
Users can specify their level of injury in their profile information, but we do not use it for search purposes because we have found that people with the same level of injury can have extremely different experiences. The actual point of injury is not as relevant as the resulting physical abilities and limitations. As a result, we decided to use physical functionality to allow a user to indicate their situation more accurately than a letter and a number. Also, if a user is unsure of their specific level of injury or has a complicated situation, they will not be excluded from the search function.
In order to play any of the videos on our site, you only need to have a web browser that is up to date. All videos on our site should play just like they would on Youtube. Click the play button in the middle of the video or click the hyperlink of the title of the video.
To search our database of videos, you'll need to be registered and logged into your profile. Once you’re logged in, to find a video and other content on a particular subject, type specific keywords that you are looking for at the top of this screen in the "Search" toolbar. Then click enter. Try using different keywords if your search does not produce the results you're looking for.
You can also click on "view all" hyperlink next to the category filter on the right side of the screen. This will provide a full list of our current categories and subcategories. Then click on the specific category and subcategory to view the content.
By clicking the "Images & Videos" tab on the top bar, you will find the main video search page. From this page, you have the opportunity to sort videos based on categories, subcategories, and tags on the right side-bar. If you have a particular category of interest, you can select it then use the Tag Filter (using you pre-selected tags or new tags for an individual search) to filter videos with the most common tags. You can also use the Tag Filter without first specifying a category or subcategory if you would just like a general search of all videos that could be applicable to your situation.
In order to share a video within the SPINALpedia network, click the "Share" icon on when you are watching a video and choose one of your contacts. This will send a recommendation to their inbox. SPINALpedia videos can also be shared and posted on external networks such as Facebook, Twitter, etc by copying the code or URL from the page you watch the video on.
The "Tag Filter" allows a user to refine their video or community search to a targeted audience rather than a user having to search through hundreds of pages of content and just happened to get lucky. The "Tag Filter" helps to simplify and expedite the search process.
Your tags will not filter your video or community searches unless you specify on the Tag Filter. As a member, you always have access to all of the content available on SPINALpedia. There are many videos that are important and interesting that are not limited to a specific set of tags. When using the Tag Filter, you always have the option to use the tags already specified on your profile or to select new tags for a specific search (your profile tags can only be changed in your Account Settings).
**When selecting tags, you can select as many or as few as you want. Using tags is completely optional, but strongly recommended in order to get the most out of SPINALpedia's technology.
We will help team you up with a mentor or mentee, but make sure you check the box on your profile saying if you want to mentor or want to mentee. Please email us at firstname.lastname@example.org to get paired up.
When you are an ambassador for SPINALpedia, you are helping us get the word out about our helpful SPINALpedia content and empowering social media posts. Examples include, sharing SPINALpedia content (our videos, links and images), sharing our Facebook posts, rewtweeting our Tweets, and sharing our Pins from Pinterest with your social networks. It's all about getting the word out with your friends and networks.
If you're interested in becoming an ambassador for Spinalpedia, please e-mail us at email@example.com. In your e-mail, please explain why you believe you'd be a great ambassador. We are interested in all types of ambassadors. Please contact us!
Yes. Your profile has a space for you to include URLs for your non-profit or business affiliations that you would like to share with the community. We also encourage you to include a link to SPINALpedia on your personal pages to help us spread the word.
To change your profile picture, click on your name at the top right of the screen and then click on "View my Profile" in the drop-down menu. On your profile page, hover your mouse over the circle on the left of your profile page and click on the icon that reads "Upload Profile Photo." From here, select a profile picture, then crop and click "Apply" to finish adding it to your profile.
If you've uploaded your picture and it's not showing on your profile correctly, it may be the wrong kind of picture format or it may be too small. Please make sure your picture is in either jpg, gif or png format and at least 400 pixels wide. If you are still having problems, please e-mail us at firstname.lastname@example.org so we can assist you.
To get your profile to be 100%, you'll need to answer all of the questions in your profile. This includes Your Full Name, Date of birth, Gender, Preferred Language, Race, Country/State/City and Community Role (and which categories you would like to mentor in, if you’d like to be a Mentor). Your injury details also need to be completed, including your particular mobility functions (Arm, Leg and Torso mobility levels), Complete or Incomplete, Ventilator Dependent, Level of Injury, Cause of Injury and Date of Injury. Finally, fill out the “Bio” tab to reach 100%.
In order to browse other users, click the 'Community' tab on the top bar. On this main community page you can filter members based on the tags you identified on your profile or new tags you select. The filtered list of community members will indicate your common tags and allow you to view their profile and videos and connect with them by adding them as a contact and/or sending them a message.
On the community search page, there is always an option to "Add as a contact" for each member displayed. When watching a video, you also have the option to add the creator of the video to your contact list. Also, when viewing another member's profile, there is another option to add the user to your contact list.
Users have the options to send private messages and leave comments on videos. If you would like to see more videos from a specific user, make a request!
When watching a video, there is always an option to "Flag" a video as inappropriate, which notifies the site administrators. There is a variety of content on the site, but we aim to have helpful and educational content and appreciate members' efforts to maintain the high quality of our videos.
There is an option for a user to block another user, which will make your account information invisible to him or her and he or she will not have the option to contact you through SPINALpedia in any way. If you are suspicious that a member is acting inappropriately or is violating SPINALpedia's Terms of Service, you can "Flag" a member, and it will automatically notify site administrators. Here at SPINALpedia, we strive to maintain a respectful, beneficial community, and we rely on our members to help us in this goal.