Latest News

SPINALpedia Co-Founder Reflects on Injury Anniversary Read

1 August 2019, 6:32 pm

15 years ago today I had my spinal cord injury. Every subsequent year since, I chose to CELEBRATE THIS DAY and to reflect on how far I’ve come. My journey is one that luckily I did not have to travel alone. It takes a team for a quadriplegic to live safely in the community and...

Determined2Heal Begins Training for First Triathlon Read

30 July 2019, 7:48 pm

A huge THANKS to CITGO for their generosity and sponsorship of Determined2Heal’s first triathlon race. CITGO Fueling Good program gives back to communities across the country. The spinal cord injury and paralysis community are lucky to have CITGO on our side!

Life After Paralysis podcast: Episode Buying a Home Read

23 July 2019, 7:35 pm

How do you find a home that’s accessible or can easily be made accessible? Are their special home buying grants available? What about making your home accessible after the purchase? Tiffiny is joined by 4 guests for an epic 1.5 hour show on everything SCI & home buying. To listen to the guest you’re most...

Guest Blog: My Neurogenic Life Read

15 July 2019, 6:54 pm

In the last year, my life has changed tremendously. I finally discovered I’m part of a huge spinal cord injury community. Both in New York and New Jersey, as well as online. I thank Tiffiny and the rest of the SPINALpedia squad for letting me write. I’ve been paralyzed almost all my life and there...

SCI Superstar: Kris Cordero Read

8 July 2019, 7:20 pm

Finding your place in the world after a spinal cord injury can seem like an impossible task. For Kris Cordero, 36, this was certainly the case. He felt as if his identity had been stripped away and lapsed into a full-blown depression for years. This however was the impetus for his next chapter in life.

Life After Paralysis podcast: Episode Current State of Spinal Cord Injury Research w/ Dr. Lyn Jakeman and Rob Wudlick Read

21 June 2019, 8:15 pm

In Episode #1 of Life After Paralysis, Tiffiny is joined by Dr. Lyn Jakeman, a prominent SCI researcher and Director of the Division of Neuroscience in Extramural Programs at National Institute of Neurological Disorders and Stroke (NINDS), and Rob Wudlick, a quadriplegic and SCI research advocate from Minnesota. They discuss the latest in research for...

SCI Superstar: Ali Stroker Read

11 June 2019, 10:37 pm

The theater world will never be the same for people with and without disabilities thanks to Ali Stroker. You may have just heard of her because of her recent Tony win, but she’s been working hard for years in a world where wheelchair-users are rare. She has, without question, shattered the glass ceiling for actors...

SCI Superstar: Brook McCall Read

4 June 2019, 5:37 pm

A tale of two lives is often the story of people who’ve experienced a spinal cord injury – the life before their injury and their life afterwards. For Brook McCall, the Grassroots Advocacy Manager for the United Spinal Association, this is definitely the case. While a severe spinal cord injury may have changed the life...

My World of Music Read

23 January 2019, 9:32 pm

The first word that comes to mind about singing while on a ventilator is FRUSTRATION! It is frustrating because I have been paralyzed for most of my life. I’ve been singing since I was five years old but my voice has gone through constant changes. I think I finally understand my voice and what I...

Give to SPINALpedia on #GivingTuesday Read

21 November 2018, 11:53 pm

Our annual holiday fundraiser is about to begin! This year we’re taking part in #GivingThursday on Tuesday, November 27th, the day after Cyber Monday. We aim to raise $50,000 this year! You can help us reach that amount between now and Jan. 2nd. Every dollar helps make a difference in the lives of people with paralysis. You can...