Latest News

My World of Music Read

23 January 2019, 9:32 pm

The first word that comes to mind about singing while on a ventilator is FRUSTRATION! It is frustrating because I have been paralyzed for most of my life. I’ve been singing since I was five years old but my voice has gone through constant changes. I think I finally understand my voice and what I...

Give to SPINALpedia on #GivingTuesday Read

21 November 2018, 11:53 pm

Our annual holiday fundraiser is about to begin! This year we’re taking part in #GivingThursday on Tuesday, November 27th, the day after Cyber Monday. We aim to raise $50,000 this year! You can help us reach that amount between now and Jan. 2nd. Every dollar helps make a difference in the lives of people with paralysis. You can...

Accessible Resources Independence 3-Part SCI Speaker Series Read

28 August 2018, 7:55 pm

For those of you who will be in the Maryland-area this Fall, a fantastic three-part speaker series is happening, and it’s a can’t-miss event. The independent-living center Accessible Resources Independence in Columbia, Maryland is putting on this speaking event. The dates and times, as well as the topic of each speaker, can be found below. Each...

SPINALpedia Has a NEW Advice Column & Needs Your Input Read

28 August 2018, 7:29 pm

In less than four sentences, please share any awkward, funny, heartfelt, sad or serious interactions involving your spinal cord injury life and the able-bodied world. We are starting a New Advice Column, “As the Wheel Turns: Disability Perspectives,” that takes real-world moments and digests them into something that ALL ABILITIES can learn from. Share away!

SPINALpedia 2018 Research eBook Read

9 August 2018, 10:06 pm

SPINALpedia Summer Newsletter 2018 Read

8 August 2018, 7:38 pm

Follow this research at Boston Children’s here Follow the research at BioArctic here Follow the research at King’s College London here...

Joanna Bonilla Crosses Off a Bucket List Goal Post-Injury Read

16 July 2018, 7:59 pm

Soon after a spinal cord injury many of us start getting that sneaking suspicion that we’re missing out on life. Whether it’s an event we can’t attend because of inaccessibility, or an activity we can’t do because of our paralysis, they begin to stack up. Joanna Bonilla, a 34 year old woman who was paralyzed...

Free book for Acute SCI: Get Smart Fast, Know Your Rights Read

9 July 2018, 9:39 pm

In the first ninety-something days after a spinal cord injury, the fear of the unknown and the many unanswered questions running through your head is one of the toughest parts of this time. Doctors, nurses and social workers try to give you as much advice as you can, but paralysis is an ever evolving  world...

Joanna Finally Crosses Off a Fun Goal Post-Injury Read

8 June 2018, 6:30 pm

Soon after a spinal cord injury many of us start getting that sneaking suspicion that we’re missing out on life. Whether it’s an event we can’t attend because it not accessible or an activity we can’t do because of our paralysis, they begin to stack up. Joanna Bonilla, paralyzed by Lupus, put a temporary halt...

Rayne Shield: A Waterproof Leg Protector Read

7 June 2018, 7:30 pm

It would be fair to say that nature isn’t the most wheelchair friendly, and especially when it comes to the rain. From bulky raincoats to umbrellas that just don’t reach everywhere (leaving knees and shoes wet!), what’s a wheelchair-user to do? Annette Flowe, a paraplegic from Germany, was sick of getting wet every time it...